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A Caregiver's Bill of Rights


I have the right:

To take care of myself. This is not an act of selfishness. It will give me the capability of taking better care of my loved one.
To seek help from others even though my loved one may object. I recognize the limits of my own endurance and strength.
To maintain facets of my own life that do not include the person I provide care for, just as I would if he or she were healthy. I know that I do everything I reasonably can for this person and I have the right to do some things just for myself.
To get angry, be depressed and express other difficult feelings occasionally.
To reject any attempt by my loved one [either conscious or unconscious] to manipulate me through guilt, anger or depression.
To receive consideration, affection, forgiveness and acceptance for what I do for my loved one for as long as I offer these qualities in return.
To take pride in what I am accomplishing and to applaud the courage it has sometimes taken to meet the needs of my loved one.
To protect my individuality and my right to make a life for myself that will sustain me in the time when my loved one no longer needs my full time help.
To expect and demand that as new strides are made in finding resources to aid physically and mentally impaired older persons in our country, similar strides will be made toward aiding and supporting caregivers.
  Wendy Lustbader

VON    Caregiver Best Practice Manual


Improving Care in Your Practice - manual
 
This new ICIC manual was created to help individual practice teams begin improving care for their chronically ill patients. It is a work in progress, and we hope that you will experiment with it and suggest ways to make it more user-friendly. Based on your feedback we will continue to refine and revise the manual so that it meets the needs of all practitioners interested in improving care processes.

source:  SEATTLE:  chronic care, www.improvingchroniccare.org/change

Policy Papers (through Canadian Coalition for Seniors' Mental Health):
1. “The Road to Recognition: International Review of Public Policies to Support Family and Informal Caregiving”
2. “Paid Family and Medical Leave: Why We Need It, How We Can Get It”
3. “Caregiver Depression: A Growing Mental Health Concern”

bulletThe Nova Scotia Centre on Aging; Caregiver Resource Library
bulletU.S. Administration on Aging has released the "Promising Practices in the Field of Caregiving
bulletVeteran's Affairs Canada: "Care for the Caregiver: A Manual for Implementing Workshops"