Caregiving Films

 

Dalhousie Faculty of Medicine, Film Series  http://www.changingworlds.dal.ca/en/fs.htm  changingworlds@dal.ca
1-902-494-6255  
Blye.frank@dal.ca
Anna.MacLeod@Dal.Ca

October 27
Title: Labour of Love
Time: 12:00-1:00pm
Location: Theatre D, CRC

First Place Winner, 1998 Media Awards of the National Council on Family Relations
Best Documentary (General Subject) 1998 Yorkton Film Festival

Walk through almost any neighbourhood, and behind one of those front doors you'll find a family caregiver. The numbers are staggering. Over 25 million North Americans are currently looking after elderly relatives with health problems.

Shot over an entire year, Labour of Love shows the human side of caregiving - the loving bonds, the frustrations and heartaches, the mundane tasks and the constant fatigue.

Labour of Love includes five intimate profiles of caregivers and their families. This special video takes us to the heart of what it means to be a caregiver, offering hope for everyone who is caring for a family member.

 

Title: When the day comes

Rating: 3.1 out of 4

Reference: Director, Sharon McGowan; producer, Chantal Bowen.
Montréal: National Film Board of Canada, 1991.
29 minutes
Call number: video 2742

Abstract: The majority of elderly Canadians are taken care of by a family member, usually a wife, daughter or mother. This documentary profiles four women caregivers who constitute an important yet unofficial component of Canada's health care system.

Reviews and Numerical Ratings

3 This video presents perspectives on caregiving for the frail & frail elderly, primarily through first person narratives. This video demonstrates the gendered nature of care-giving, and demonstrates the lack of support, loss of income, loss of health, & other issues faced by care-givers. The video is emotionally powerful, and exposes a wide variety of issues. While upper middle class persons dominate, there is some diversity of race & kinship tie included. My concern about this video is that it does not expose the political/economic nature of care-giving, and its presentation of a caregiver's support group might be interpreted by undergrads as the "magic bullet" to solve this social issue. Use with care. Susan Braedley

3.5 Does a remarkable job of showing the difficulties that caregivers experience when caring for the elderly. The cases used in the video effectively demonstrate the unbearable workload, stresses, grief & anxiety that consume the lives of these women. Illustrates how these women feel excruciatingly burnt out as they are expected to still take care of their own children & often have other jobs. Problems are only compounded when it is the ageing who are taking care of the aged. Preserving the dignity & quality of life for the elderly is identified as a struggle since many elderly persons feel defensive over the loss of their independence.

New PBS Documentary Highlights Productive Aging in America

The focus of the one-hour Forward In Time is the experience of aging and the potential for productive and creative aging in America.  The footage reflects the 80% of active and healthy seniors who utilize productive aging skills and techniques to enjoy a higher quality of life and more creative retirement. 

53 minute program

The technical advisor for this project is Donna Wagner, Ph.D., the Director of the Center for Productive Aging at Towson University in Maryland.

Underwriters for the project include: The MassMutual Financial Group, ING Financial Services, Classic Residences at Hyatt, 2 Johnson & Johnson companies, Depuy, Inc. & Ethicon, Inc., and Belmont Village.

Hosted by Shelley Fabares and produced in cooperation with KRCB, our original aging documentary, Our Parents, Ourselves was broadcast on more than 170 PBS affiliates in 47 states around the country between 1996 and 1998.  The focus of this program were the care giving issues that affected millions of working adults and their aging, dependent relatives.

To complement Forward In Time, Parallel Lines is also developing a new web site, www.ForwardIntime.com, which will provide links to our underwriters, as well as related aging organizations recommended by our advisors.

[contact Senior Journal     http://www.seniorjournal.com/feedback.html]

Caregivers
Family caregivers are a crucial element in Ohio's long-term care system. Several sites are focused on caring for those who care for others. (All links open in a new window)

Aging Parents and Elder Care
This resource provides advice, comprehensive checklists and links that make it easy for family caregivers to quickly find the information they need - and avoid missing things that are important in the care of their loved one.

Alzheimer's Association
The Alzheimer’s Association, is the largest national voluntary health organization committed to finding a cure for Alzheimer’s and helping those affected by the disease.

The Alzheimer’s Information Site
The Alzheimer's information site provides comprehensive information and resources on the devastating disease. It offers help for caregivers, family members, people living with Alzheimer's, and anyone who has an interest in conquering this devastating disease.

Alzheimer Solutions
Alzheimer Solutions is a rich information source for caregivers. Sections are devoted to Caregiving, Causes, Diagnosis, Prevention, Stages and Treatments.

Because We Care: A Guide for Those who Care
This guide from the AoA contains a range of suggestions to make care giving easier and more successful - whether you are the caregiver or the person who monitors care for a family member or friend.

Caregiver Assistance Network
Catholic Social Services of Southwestern Ohio not only provides resources and support for area caregivers, but also offers valuable links, publications and other help for all of Ohio's caregivers.

Family Caregiver Alliance
The FCA web site contains specialized information on Alzheimer's disease, stroke, traumatic brain injury, Parkinson's disease, ALS and other disorders and long-term care concerns.

LTC Link
This directory contains more than 600 links in 25+ categories including Medicaid, Medicare, care giving, insurance and medical issues

Last Acts
Last Acts is a campaign to improve end-of-life care that provides information and resources for professionals and volunteers working with dying patients and their families.

National Alliance for Caregiving
The NAC is dedicated to providing support to family caregivers of older persons and the professionals who help them and to increase public awareness of issues facing family caregiving.

National Association of Professional Geriatric Care Managers
GCM is committed to maximizing the independence and autonomy of elders while striving to ensure that the highest quality and most cost-effective health and human services are used when and where appropriate.

National Family Caregiver Support Program
The U.S. Administration on Aging provides a wealth of information and resources about programs and services to help folks care for aging loved ones.

Thou Shalt Honor Foundation
The producers of last year's PBS documentary have formed a Foundation to support family caregivers' efforts through advocacy, public education and multimedia communications, including a 25-city series of Town Hall meetings on chronic care issues.

 

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In the News...

For Immediate Release
October 7, 2002
Contact: Lisa A. Shenkle
410.439.4695 / lshenkle@att.net

 

Maryland Public Television presents And Thou Shalt Honor

Documentary faces the emerging health care issue of care giving
and explores answers for viewers with expert supported phone bank

OWINGS MILLS, MD: On Wednesday, October 9 from 9:00 p.m. until 11:00 p.m., Maryland Public Television (MPT) airs And Thou Shalt Honor: Caring for Our Aging Parents, Spouses and Friends, a ground breaking broadcast special raising awareness of the joys and difficulties of care giving. This moving production focuses on family members coming together, communicating, and navigating their way through medical, financial and legal labyrinths of care giving. Program host Joe Mantegna provides context and commentary for unfolding, compelling, real-life stories. Experts and voices of family and professional care givers are woven throughout narrated segments.

MPT is offering a powerful community outreach network to complement the broadcast of And Thou Shalt Honor. A team of trained counselors from the Maryland state and local departments of aging are on hand during the broadcast to assist viewers in obtaining the care giving support they need by connecting them to the numerous agencies and organizations available for that purpose. And Thou Shalt Honor viewers need only to call (800) 222-1292 during broadcast hours to utilize this outreach element. The Harry & Jeanette Weinberg Foundation, the Maryland State Department of Aging, and MPT make the phone bank possible. At the time of broadcast, MPT is adding a complementary Web page at www.mpt.org offering information relative to the program and vital to those delivering care to the elderly. This Web page brings visitors a click from contact with numerous community resources available to care givers. The Harry & Jeanette Weinberg Foundation, Hospice Alliance and Erickson Retirement Communities join MPT in this initiative.

MPT partners for And Thou Shalt Honor are providing expert resources, discussion venues, and/or financial support for the community outreach. Copies of the program are being made available for state and area agencies for community training on the issues of elder care.

The October 9 premiere of And Thou Shalt Honor is the first of four MPT broadcasts of this program through July 2003. It repeats October 13 at 3-5 p.m. and November 26 at 9-11 p.m.

Maryland Public Television is a not-for-profit, state-licensed public television station which serves the citizens and communities of Maryland and beyond through a variety of broadcast and nonbroadcast activities.

MPT is a national leader in the production of broadcast programming for public television. MPT's local/regional television credits include public affairs, original performance, documentary, and entertainment programs for the citizens of Maryland.

Beyond broadcast, MPT creates instructional videos, develops training, and builds Internet sites that serve tens of thousands of students, teachers, and child-care providers annually. MPT outreach activities, especially relating to arts, culture, and history, take place in all areas of the state to further fulfill MPT's mission to engage, enlighten, and entertain.

For more information on Maryland Public Television and MPT-produced programming visit the MPT Web site at www.mpt.org.

And Thou Shalt Honor is produced by Wiland-Bell Productions, LLC. Executive Producers: Harry Wiland and Dale Bell; Producers: Dale Bell, Harry Wiland, Teresa Modnick and Beverly Baroff; Directed by: Harry Wiland and Dale Bell; Editor: Beverly Baroff; Written by Beverly Baroff, Harry Wiland and Dale Bell; Host: Joe Mantegna. Gail Gibson Hunt, Executive Director of the National Alliance for Caregiving, is the project's Technical Advisor.

# # #

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During the second half of the 20th Century, advances in medical technology made it possible for individuals to survive for years with diseases and chronic conditions that would have made a rapid death just a few years before. Though laudable, this created a new population of persons in need of caregiving ... and, therefore, a new population of caregivers.

http://caregivers-usa.org/aa/cgvr.html

http://www.atsh.org/about/journey.html

The Producers' Journey

Neither Harry Wiland nor his brother, Michael, had a sister to fall back on when their father was diagnosed with Alzheimer's disease years ago. From his home in Los Angeles, Harry would travel to Miami to care for his dying father, alternating his trips with Michael's from New York.

 
The Wilands

Lillian and Nathan Wiland

Neither knew there were other people suffering similar disruptions in their family and professional lives. Both felt extremely alone. Both incurred great expense, financial and psychological.

Although the two brothers were drawn together as they had never been before by the experience of caring for their father, they knew "there had to be a better way." From their collective anger, frustration, and spiritual growth, this PBS CareGiving Series is born.

Dale Bell, partnered with Harry in this project, did have a sister and a brother, both of whom lived closer to their respective mother and father than Dale did. Yet it fell upon Dale, the middle sibling, to travel to both mother and father, separated by divorce almost forty years earlier, and to try to care for their debilitating diseases alone. No outside support, little family support. Too much anger, too little love.

Hugo L. Bell (top)
Dale Thorsen Frank (bottom)

When Dale's dad died exactly on his 86th birthday, Dale wrote about the exhilarating experience they had shared together over his last weeks and distributed his memoir to those family members who could not bear to "see their Dad in that state." Over years of travel and daily phone calls to Houston, Dale moved his none-too-cooperative mother from home care to private care to Medicaid as her money depleted. Blind, emaciated, alive only with support from a pacemaker and an oxygen tank, she was "still dying for a cigarette" at 88 when Dale spooned the last bite of her cherished ice cream into her mouth on Mother's Day. Finally, his solo CareGiving nightmare with this alcoholic, narcissistic, arrogant mother whom he adored for all her positive contributions to his life came to an end. Once the leading model on the walkway at Bergdorf Goodman's, New York's premier department store during the 1930's, she attracted no family members to her services, except Dale.

Two men. Two CareGivers. Both had spent their own money, juggled their personal lives and work, tried to discover support services that were often inadequate, yet both were completely devoted to a mission that added great meaning to their lives. Throughout, the simple act of giving -- untutored and unsupported -- provided their fuel.

From such atypical yet encompassing experiences, these two men now collaborate to bring the inspirational, personal stories of CareGivers throughout the country to a wider audience through PBS. They are multiple award-winning television producers, writers, and directors, and they now seek to harness the power of the media to bring new appreciation to the needs, concerns and contributions of CareGivers. In addition, by utilizing the vast resources of the Internet, and drawing upon the support of outreach partners like the UCLA Schools of Medicine and Public Health, Stanford University's Institute for the Study of Women and Gender, MITAge Lab, the Motion Picture Television Fund, American Geriatric Society, Federal Communicable Disease Center, as well as the Board of Advisors and the agencies they represent, Harry and Dale seek to provide CareGivers with access to information, as well as moral and physical support.

Our expectation is that our project's extensive Outreach Campaign will create an event -- A NATIONAL HAPPENING -- when it is launched before, during and after our series.



About the Program  
What They're Saying  
The Producers' Journey  
Executive Producers  
Production Staff  
Oregon Public Broadcasting  
Board of Advisors  
Foundation Underwriters  

 

 

The Farmer's Wife

Taxicab Confessions 5: Las Vegas

Secrets & Lies

Michael Moore

Daughter looks intensely at camera, mother has eyes closed

Isabelle McKenna, diagnosed with Alzheimer's disease 13 years ago, is shown with her daughter Maureen in the iconic image for The Forgetting. (Photo: Twin Cities PTV.)

Proud memory: The Forgetting

Originally published in Current, June 21, 2004
By Steve Behrens

Strange how a harrowing program about a nightmare disease can become a major feel-good event for public TV.

Though some viewers said they didn't like seeing the difficult realities of The Forgetting: A Portrait of Alzheimer's and its stories of three families and medical researchers struggling with Alzheimer's disease, many more, paradoxically, thanked public TV for showing it to them in January.

Along with the bad news, the program brought viewers some relief--information about a disease they didn't understand and hope about the help they didn't know they could get.

"The more information that's out there, the more people can say, 'Grandma was really mean today, but that's the Alzheimer's talking,'" says Chris Siefert, outreach director at Montana PBS in Bozeman.

A repeat of the broadcast June 16 [2004] — unexpectedly timely with President Reagan's death 11 days before — added an audience two-thirds the size of the debut broadcast Jan. 21. The debut averaged a 2.2 rating and the repeat 1.5. Local ratings in January ran as high as 6.8 in Twin Cities and 4.7 in Salt Lake City. The program's website on PBS.org drew 1 million page views in a week.

Critics as well as viewers applauded the effort.
"Ever wonder why we still need PBS in a world of 500 channels?" pondered critic Robert Bianco in USA Today. "In part, it's because no other network would do The Forgetting: A Portrait of Alzheimer's . . ."

It felt right to public broadcasters. The program and outreach project "is exactly what we in PTV should be doing," wrote Larry Smith, g.m. of KUED in Salt Lake City.

Since the January broadcast, Executive Producer Naomi Boak of Twin Cities PTV has had many gratifying responses to the project. "The best of all," she says, "is seeing how many people got off their butts and asked for help." On that January night, the national help line of the Alzheimer's Association, a major partner in the outreach project, got 2,400 calls, when they'd normally handle 75, she says.

Many additional people called phone banks at public TV stations--300 at Arkansas ETV and 1,300 at Houston PBS. Volunteers at Maryland PTV answered calls for two hours after the program ended, says Mike Splaine, director of advocacy programs for the Alzheimer's Association, who worked the phones.

Splaine remembers people calling with thanks for the broadcast and many who worried about Mom and wanted information. Those were like "411" calls, he says. "The real hair-raising ones were the 911 calls" — from people who needed immediate help. One woman said she goes driving and sometimes forgets what stop signs are. "That was a scary call."

Without an affecting broadcast, the callers never would have picked up the phone, he says. The 90-minute doc by writer/producer Elizabeth Arledge not only sketched recent medical research but showed the Fuget, Noonan and McKenna families coping with the disease. "The family story in The Forgetting is, I think, what gives people hope — if there is something wrong with me, maybe my family will rally around me like the Noonans," says Splaine.

Stations' outreach efforts — many funded by MetLife Foundation and CPB — went after viewers who particularly need help, says Boak. "With a disease like Alzheimer's, which is so isolating and so misunderstood by professionals and lay people alike, information and resources are critical."

"It's not just an informational piece, it's an impactful piece," says Siefert in Montana. The state network worked with extension agents in 17 counties, who screened the program in community centers.

She remembers sending a cassette to a man in the tiny town of Chinook, who showed it to caregivers at the nursing home where his wife lived. After she died, he wanted to start a support group for other caregivers. "You learn so much in this journey, you want to share it," says Siefert.

Boak says her own father-in-law, whose wife is in a middle stage of Alzheimer's, "practices the John Wayne school of caregiving," but after seeing the program he made sure his friends saw it, too. "For this Connecticut Yankee to do that was a real cry for help."

Of 30 stations that received outreach grants, 23 produced companion programs emphasizing local Alzheimer's resources, according to a project evaluation commissioned by the National Center for Outreach. In Warrensburg, Mo., KMOS got such a strong reaction it extended the live local broadcast from 30 to 60 minutes. Stations held more than 140 workshops and training events.

Twenty-five of the stations did projects with local branches of the Alzheimer's Association and many with aging and health agencies.

More than 500 activists reported holding Alzheimer's Association house parties on broadcast night — the largest advocacy drive in the association's history, says Splaine. The group told PBS that the program prompted more than 14,000 letters to Congress urging increased research funding.

Some stations distributed hundreds or thousands of information packets, while others narrowed their focus. On the advice of local experts, WCMU in Mt. Pleasant, Mich., organized a teleconference to train rural physicians in Alzheimer's diagnosis, illustrated with pretaped enactments of mental exams, says Linda Dielman, program/outreach manager.

In Kansas City, Mo., KCPT targeted caregivers who don't often seek help from social service agencies — African-American and Hispanic caregivers and children who find themselves in that role at least part of every day, says Nick Haines, executive producer.

KEET in Eureka, Calif., organized training for Pet Partners therapy — taking dogs to Alzheimer's sufferers, who enjoy and benefit from petting the animals, says Claire Reynolds, the station's outreach chief. The local humane society will continue the project.

Outreach efforts around The Forgetting conveyed a lot of information, says Evan Leach, a consultant who filed the evaluation for NCO last week. Caregivers reached by outreach said they felt less isolated, better able to empathize with Alzheimer's sufferers. In surveys and interviews they even showed signs of attitude change, saying they would be more likely to share caregiving duties with others, he says.

But he found no evidence that outreach could change people's behavior over the long term — easing their stress, for instance. For such changes, the communication would have to be more intense, sustained and specific, according to Leach, a nonprofits specialist at West Chester University, near Philadelphia. Outreach planners may need to decide that changing behavior would be great, but their realistic goal is education, he says.

Twin Cities PTV began working on its Alzheimer's project more than two years ago, but had moments of quick acceptance. When Gerald Richman, national production v.p., suggested the project in 2001, Boak remembers, they started talking about people with the disease. His mother has it. Her mother does, too. Her grandmother and mother-in-law had it. And millions more have it, or will. "We thought it was something PBS needed to do," Boak says.

Then in June 2002 MetLife Foundation agreed to underwrite it within an hour — "a once in a lifetime experience," she says. It backed program and outreach and even suggested places where she could spend more money. The project budget grew to $2.5 million, with more than half devoted to outreach, promotion and the website.

How will Boak and other national producers follow up? Chris Siefert in Montana would like national producers to offer a program on aging health issues every month. Failing that, it could be done at least once a year, she adds.

Boak says she may update The Forgetting as research advances, but the station's also pursuing outreach projects on behalf of classical music — to bring people back to concert halls. And in the area of health, she's planning a national special on obesity — a widespread and grave health risk, like Alzheimer's, that many people don't understand.

EARLIER ARTICLES

Eighteen million viewers tuned in for Bill Moyers' series on death and dying in 2000 — a program-outreach project that established local relationships that were revived in 2004 for The Forgetting.

OUTSIDE LINKS

The Forgetting website.

Washington Post web chat/interview with author David Shenk about President Reagan.

 

Another dimension of caregiving, which is increasing at an alarming rate, is that of grandparents who are caring for grandchildren whose biological parents are incapacitated by substance abuse, incarceration, premature death, etc.

Nationally (US), seven million persons over the age of 65 need help with the tasks of daily living: feeding, dressing and bathing.

 

 

Ethical Issues

As we live longer and medical technology continues to advance, the Baby Boomers will face a multitude of life and death decisions. These decisions include such issues as Do Not Resuscitate Orders, quality of life vs. quantity of life, caregiver vs. care recipient beliefs, proxy appointments, service availability based on ability to pay, and more. Bruce Hilton, Director of the National Center for Bioethics suggests that care recipients explore and define health beliefs with their caregivers. This may be difficult for Baby Boomers to do. A 1998 AARP study found that 68% of Baby Boomers have not talked to their parents about independent living issues. How much more difficult is it to talk about end of life issues?

 

 

 


Filmography: Videos on Alzheimer's and Caregiving

"Evergreen"

Alzheimer's: a Practical Guide for Sitters. Dementia Education and Training Program, Alabama Department of Mental Health and Mental Retardation, 1995. 2 videocassettes (28 min.) Summary: v.1. Alzheimer's disease kills the brains of millions of Americans. Most Alzheimer's care is provided at home by families. The Alzheimer's patient requires 24 hours a day and 7 days a week care. The Alzheimer's sitter is very important in helping families care for Alzheimer's patients. All home sitters should understand the information contained in this tape, which helps them understand the Alzheimer's patient and makes their jobs easier. v. 2. This tape explains what Alzheimer's disease does to family caregivers. Alzheimer's disease destroys the brain of the patient and consumes the health, spirit, and financial resources of the caregiver. This tape contains valuable information about family stress and Alzheimer's disease and helps the sitter provide better care for both the patient and the family.

Alzheimer's: A Practical Guide to Community Resources. Produced by Dementia Education & Training Program. Montgomery: Alabama Dept. of Mental Health & Mental Retardation, 1994. (60 min.) Summary: Alzheimer's Disease is the most common cause of dementia with the loss of multiple intellectual functions, such as short-term memory, understanding speech and remembering faces. Alzheimer's victims can show personality changes and unusual behavior. Most dementia patents are cared for at home by the family and will eventually require around the clock suprvision. The program focuses on those family caregivers and Alabama health care workers with the goal of explaining (1) the basic causes of Alzheimer's Disease, (2) common symptoms and behavioral problems, and (3) practical approaches to patient care using community resources.

Alzheimer's: A Practical Guide to Pastoral Care. Produced by Dementia Education & Training Program. Tuscaloosa: University of Alabama Center for Public Education, 1995. 2 videocassettes (52 min.) Summary: v. 1. Alzheimer's Disease afflicts 10% of elders, causing intellectual loss and behavioral abnormalities. Both the patient and family caregiver benefit from pastoral support, such as education, understanding and compassion. Informed pastors and supportive congregations can help Alzheimer victims remain in their homes with dignity, respect and quality of life. This non-denominational tape defines key issues for Alzheimer's pastoral cae and underscores the rewards of this dedication. v. 2. The spiritual community is a powerful friend to older citizens. Pastors and congregations minister to many elders with Alzheimer's disease and their family caregivers. This program explains dementia from the perspective of pastors, patients, family caregivers and professionals. This information helps pastors and congregations console the victims of dementia and sustain family caregivers in their mission of caring. Pastors and family members share practical ways to help these individuals. This program helps pastors and congregtions find the special joy of ministering to humans who are stripped of their brain and mind but not of their soul.

Alzheimer's Disease Lebanon, NH: Dartmouth-Hitchcock Medical Center (The Doctor is In Series) (28 min.)

Alzheimer's Disease: How Families Cope. A production of Dartmouth-Hitchcock Medical Center. Princeton, N.J.: Films for the Humanities & Sciences, 1997. (28 min.) Summary: In this program, families who are caregivers provide practical information on how to manage the home care of a loved one who Alzheimer's.

Alzheimer's Disease: at Time of Diagnosis. New York: Time Life Medical, 1996. (30 min.) ISBN: 1575770016 C. Everett Koop, medical director; Mike Schneider, host. Contents: Understanding the diagnosis -- What happens next? -- Treatment & management -- Issues & answers.

Alzheimer's Disease: the Family Conference. Washington, D.C.: Veteran's Administration, 1989. (19 min.)

Alzheimer's Disease: the Journey Within. by Arlo Grafton and S Grafton, Arlo. ; Martin, Sue. (View from the inside series) Omaha, NE: Envision Communications, 1995. (20 min.)
Summary: takes the view through a daughter's deepest feelings as she watches her mother go through the beginning stages of alzheimer's disease. Using a joural written over a 12-month period, the daughter expresses her feelings of denial, shock, anger, and finally acceptance ... and through that acceptance, experiences a profound change in herself.

Alzheimer's: Effects on Patients and their Families. Princeton, N.J.: Films for the Humanities, 1991. (19 min.)

Alzheimer's disease family education videotape series. Des Moines: Iowa Department of Elder Affairs, 1987. 4 videocassettes (127 min.) Contents: 1. The stages of Alzheimer's disease: implications for the family -- 2. Financial and legal issues for family caregivers -- 3. Caring for the caregiver I : strategies for stress and guilt management -- 4. Dependent adult abuse: responsibilities and avenues for assistance.

Alzheimer's Disease: the Long Nightmare.Princeton, N.J.: Films for the Humanities, 1987. (19 min.)

Alzheimer's Disease: Managing the Later Stages in the Home. Washington, D.C.: Veteran's Administration, 1989. (15 min.)

Alzheimer's Disease: Stolen Tomorrows. Van Nuys, CA: AIMS Media, 1988. (26 min.)

Alzheimer's Disease: You Are Not Alone. Park Ridge, IL : Retirement Research Foundation, 1984.. (28 min.) Summary: Shows how Alzheimer's disease affects both its victims and their families and shows some of the help available.

Alzheimer's 101: the Basis for Caregiving. South Carolina Commision on Aging; South Carolina Educational Television, 1994. (85 min.)

An Alzheimer's Story. New York: Filmakers Library, 1985. (28 min.)

Another home for mom. by Lori Hope. Boston: Fanlight Productions, 1991. (28 min.)
Summary: Follows the case of Alzheimer's patient Jeanne Amos and her family as they cope with the problems of her care.

Bringing Out the Best (Dementia Programming and Activities series) Winston-Salem, NC: Partners in Caregiving, The Dementia Services Program, Bowman Gray School of Medicine of Wake Forest University, Department of Psychiatry and Behavioral Medicine, 1994.4 videocassettes (ca. 356 min.)
Summary: A national program of the Robert Wood Johnson Foundation, provides technical assistance and grant support to help adult day centers develop and strenghthen innovative center-based, in-home, and other respite programs for people with chronic cognitive disorders - particularly dementia.
Contents: Tape 1. Direct care techniques (part 1) -- tape 2. Direct care techniques (part 2) -- tape 3. Activity ideas and resources -- tape 4. Adminstrative concerns.

Caregiving with Grace. by Susan Hadary Cohen and W.A. Whitford. Baltimore: Video Services, 1987. Videotaped ten years after the initial diagnosis of Alzheimer's disease, this documentary shows the daily care provided for Grace by her husband and a foster home. Grace now needs constant supervision and considerable assistance with activities of daily iving, personal hygiene, and the bathroom. She rarely speaks and does not follow conversations. Her husband and foster home caregiver share both practical and emotional solutions for caregiving with Grace.

Caring...Families Coping with Alzheimer's Disease. Chicago, IL: Alzheimer's Diseaseand Related Disorders Association, 1985. (28 min.)

Comfort for Alzheimer's Families. Robin Miller, Filmaker

Communication Strategies for Alzheimer's Patients. Geriatric Video Publications (30 min.)

Coping Skills Nashville: Life View Resources (The Educated Caregiver Series, v. 1)

Dealing with Alzheimer's disease: a common sense approach to communication St Paul: Ramsey Foundation, c1990. (21 min.) Funded by a grant from the Ramsey Foundation. Producer, Karen Feldt; writer/field producer, Kermit Cantwell. Summary: Discusses verbal and nonverbal communication techniques with Alzheimer's patients.

The Diary of Rozie Mock. by Henry Stephen Vogel. Eugene, OR: Showplace, 1990. (28 min)
Summary: Portrait of a woman who braved the mental and physical deterioration of her husband due to Alzheimer's disease. Presents interviews and excerpts from her diary to illuminate how she dealt with his condition.

Do you remember love? Los Angeles: Fries & Distribution, 1985. (28 min.)

Flowers for Peggy by Franklin K. Cassel. Lancaster, PA (Brethren Village, 3001 Lititz Pike) : F. Cassel, 1997. Prepared to be helpful to family and caregivers, Dr. Franklin K. Cassel shares his wife's story in this video, "Flowers for Peggy" by Tyler Speicher, a brief of Peggy's memorial service, and part of WGAL's 12:30 Live with Lori Burkholder.

Early onset memory loss: a conversation with Letty Tennis by Lisa P. Gwyther and Claiborne M. Clark. Durham, NC: Duke University, 1992. (22 min.)
Summary: Tennis and her husband relate how she learned about and copes, on a daily basis, with her memory loss due to an early onset of Alzheimer's.

Glass curtain. New York: Chase, 1983. (28 cm.)

Glenn's perspective on Grace. Baltimore, MD: Video Press, University of Maryland at Baltimore, 1990 (20 min.)
Participants: Glenn Kirkland, Grace Kirkland.
Summary: Describes the final months of caring for an Alzheimer's patient.

Grace. by Susan Hadary Cohen and W.A. Whiteford. Baltimore, Md.: Video Services, Dept. of Physical Therapy, School of Medicine, University of Maryland at Baltimore, 1990. (58 min.)
Participants: Glenn Kirkland, Grace Kirkland.
Summary: Overview of 13 years in an Alzheimer's patient's life including home care, and foster home care. The primary health care giver addresses the demands of the disease, both loss of cognitive and physical function, and the stages which lead to Grace's death.

In and Out of Time by Elizabeth Finlayson. Hohokus, NJ: New Day Films, 1996. (14 min.) Takes a sympathetic look, through a granddaughter's eyes, at some of the changes that Alzheimer's Disease brings to a family relationship as the past grows dimmer for her grandmother.

Living with Grace. Baltimore, MD: Video Services, Dept. of Physical Therapy, School of Medicine, University of Maryland at Baltimore, 1983. (28 min.)
Summary: Documents the life of Grace, a woman suffering from Alzheimer's disease, and shows the impact of the disease on her and her family. Shows how her husband copes with his wife's loss of memory, emotional swings, catastrophic reactions, and confusion.

Lost in the Mind: The Mystery of Alzheimer's Disease. Washington, D.C.: Don Lennox Productions, 1996. (90 min.)

Grandpa doesn't know it's me. Derry, NH: Chip Taylor Communications, 1995. (10 min.) Donna Guthrie series. An adaption of the 1986 monograph of the same title by Donna Guthrie and illustrated by Katey Keck Arnsteen. Producer, Chip Taylor ; editor/computer graphics, Jack Mooney. Summary: Touching story of a young girl coming to understand and live with her grandfather having Alzheimer's Disease. Audience level: Primary/Intermediate.

Losing it all, the reality of Alzheimer's Disease. New York: HBO Studio Productions: Distributed by Ambrose Video Publishing, 1991. (54 min.) HBO Project Knowledge Series. First aired on HBO on October 29, 1991. Producer-writer-director, Michael Mierendorf. Princess Yasmin Aga Khan, Michael Mierendorf. Summary: A devastating look at the impact of Alzheimer's disease on five victims and their families.

Managing with Alzheimer's Disease. Timamim, MD : Milner-Fenwick, 1983 (29 min.) Summary: A program for caregivers of Alzheimer's patients. Discusses the disease and core strategies, decisions, planning, and caregiver support.

My Promise To You: the Story of Robertson and Muriel McQuilkin. Grand Rapids, MI: Produced by RBC Ministries, 1999. 1 video cassette (27 min.)
Summary: Dave Burnham interviews Robertson McQuilkin concerning his life caring for his wife Muriel, a victim of Alzheimers disease, how the caregiving has impacted his life and the spiritual lessons he has learned in the process. Parts of the video were originally recorded on Nov. 13, 1993 in Columbia, SC./ Contains sketches and paintings by Muriel McQuilkin and excerpts of her radio program titled Look up (1984). Aired as a Day of Discovery television program in May, 1999.

Not Alone in the World... Caring for Someone with Alzheimers. Schoolhouse Videos. (22 min.)

The Other Victim: Coping & Caring Techniques for the Caregivers of Alzheimer's Patients. by Dick Bakkerud. Chapel Hill, NC: Health Sciences Consortium, 1987. (48 min.)
Depicts the difficult behavior of an Alzheimer's victim toward a home caregiver. Suggests ways for the caregiver to overcome the natural impulse to anger and deal with confrontations in a more productive ways.

Poppy's Head Australia: Angell Productions Pty Limited, 1998. (23 min.) Age 12-16. AFI Award (Australian Film Institute) 1998. Starring Australian actors Leslie Dayman and Jamie Croft.
Angell Productions Pty Limited,130 Brooklyn Road, Brooklyn, NSW, Australia 2083. $55.00.
Summary: A special relationship exists between 15 y.o. Zeb and his grandfather, known to everyone as "Poppy". Zeb's mum Karen supports the family by working so Zeb has come to rely on Poppy for company and guidance but the tables are turned when Poppy falls victim to a brain disease causing dementia. Zeb not only has to look after him but must also face bullying and taunting at school.

The Silent Epidemic. New York: Filmakers Library, 1982.

Someone I Love has Alzheimer's Disease. Newton, MA: Lifecycle Productions, 1993. (17 min.) Host/narrator: Shelley Fabares; Producer/director/director, Nancy Fernandez Mills; Produced for the Alzheimer's Association of Eastern MA. Summary: Discusses the symptoms of Alzheimer's disease and the effects that this disease has on children coping with a suffering family member. Shows interviews with children aged seven to fifteen as well as interactions between children and Alzheimer's patients.

Someone I once knew. Northbrook, IL: MTI Teleprograms, 1983. (30 min.)

Surviving Dementia. Pathway Productions. (38 min.)

There Were Times, Dear: about Living with Alzheimer's Disease. Los Angeles, CA: Direct Cinema Limited, 1986. (60 min.) Shirley Jones, Len Cariou. Camera, Brianne Murphy; editor, Ken Miller; music, Jay Gruska. Summary: Focuses on victim of Alzheimer's disease, Bob Millard, showing how his entire family suffered the devastating effects. By following the family over a period of several years, updates information on the disease and its treatment.

To care: a portrait of three older caregivers Boston, MA: Consumers Union, 1987. (28 min.) ISBN: 1572951737
Summary: Takes a look at the lives of three older adults who have chosen to take care of a disabled spouse or relative at home. This documentary portrays the mix of needs and emotions experienced by both the giver and the receiver of care: frustration that a spouse or relative can no longer function independently; the need of caregivers to maintain an active life outside the home; and the rewards they experience in realizing an unanticipated capacity to give.

Voices of Caregiving: Insights along The Way. Chicago, IL: Terra Nova Films, 1994. (32 min.)
Summary: Seven caregivers who participated in the Medicare Alzheimer's Project share their stories of caring, while offering insights to others who want to understand or assist caregivers.

When Someone You Love Has Alzheimer's: A Practical Guide for Caregivers Cypress, CA: Medcom, Inc., 1995. (32 min.)

Whispering hope: unmasking the mystery of Alzheimer's. New York: FBC Productions (136 East 57th St.; N.Y, N.Y. 10022. Phone: 212-838-6268 ) 1984. (52 min.)

You Must Remember This: Inside Alzheimer's DiseaseNew York, NY: Filmakers Library, 1992. (57 min.)
Summary: This program, filmed in Australia, interweaves the experiences of Alzheimer's patients and their families with commentary of human professionals; as each case unfolds, medical experts link the symptoms with the underlying neurological disorder.

Stress reduction films for Alzheimer's patients and caregivers are available from STB Videos.

Videos which will capture the attention of Alzheimer's patients and give the caregiver a much-needed respite are offered by Video Respite.

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